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Tay-Sachs Disease

What Is the Prognosis?

Even with the best of care, children with Tay-Sachs disease usually die by age four from recurring infection. People with the adult-onset form of the disease can live full adult lives, although most become wheelchair-bound.

History of Tay-Sachs Disease

Tay-Sachs disease was named after two physicians. The first was the British physician, Warren Tay, who first described the red spot on the retina of the eye in 1881. The second was the American physician, Bernard Sachs, who described the changes that occur within cells and noted an increased prevalence in the eastern and central European Jewish (Ashkenazi) population.
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