Individuals and families affected by Huntington's disease
can take steps to ensure that they receive the best advice and care possible. Physicians and state and local health service agencies can provide information on community resources and family support groups that may exist.
Support for people with Huntington's disease may involve:
- Legal and social aid
- Home care services
- Recreation and work centers
- Group housing
- Institutional care.
Huntington's disease affects a person's capacity to reason, make judgments, and handle responsibilities. Individuals with Huntington's disease may need help with legal affairs. Wills and other important documents should be drawn up early to avoid legal problems when the person with Huntington's disease may no longer be able to represent his or her own interests. Family members should also seek out assistance if they face discrimination regarding insurance, employment, or other matters.
Caring for a person with Huntington's disease at home can be exhausting, but part-time assistance with household chores or physical care of the individual can ease this burden. Domestic help, meal programs, nursing assistance, occupational therapy, or other home services may be available from federal, state, or local health service agencies.