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Huntington's Disease Support
Many forms of support are available for individuals and families coping with Huntington's disease. Possible types of help may include legal and social aid, home care services, and institutional care. State and local health service agencies can help provide information on community resources and family support groups. Also, organizations such as the Huntington's Disease Society of America may have information about other resources.
Individuals and families affected by Huntington's disease can take steps to ensure that they receive the best advice and care possible. Physicians and state and local health service agencies can provide information on community resources and family support groups that may exist.
(Click Huntington's Disease Support Group for suggestions about what to look for in a support group.)
Support for people with Huntington's disease may involve:
- Legal and social aid
- Home care services
- Recreation and work centers
- Group housing
- Institutional care.
Huntington's disease affects a person's capacity to reason, make judgments, and handle responsibilities. Individuals with Huntington's disease may need help with legal affairs. Wills and other important documents should be drawn up early to avoid legal problems when the person with Huntington's disease may no longer be able to represent his or her own interests. Family members should also seek out assistance if they face discrimination regarding insurance, employment, or other matters.
Caring for a person with Huntington's disease at home can be exhausting, but part-time assistance with household chores or physical care of the individual can ease this burden. Domestic help, meal programs, nursing assistance, occupational therapy, or other home services may be available from federal, state, or local health service agencies.
Written by/reviewed by: Arthur Schoenstadt, MD
Last reviewed by: Arthur Schoenstadt, MD